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Lyme Disease treatment?

1.4K views 43 replies 20 participants last post by  Forrest Mosby  
#1 ·
#5 ·
I saw a documentary a few years ago about that. A few doctors experimented with long term antibiotics, 2 to 4 years i think. It worked pretty well from what I remember.

However it angered big pharma because sufferers needed more meds to live with lymes than to cure it, so they went to some doctors association that had their licenses revoked or made it very hard to practice.
 
#8 · (Edited)
A variety of antibiotics do work to greater or lesser degrees on Lyme disease. The down side if you live in an area with a healthy (or unhealthy) population of ticks is that there are many other tick-borne diseases. Some are no big deal while some can be quite bad for your health.One of the first things the DW and I put together in terms of health care (after the first aid kit and our daily meds) were courses of treatment for the diseases most common in our area that are tick borne (hey what is one more tote full of meds?)
The thought rolling around in my head is that in many likely SHTF situations we will both be out in the gardens and orchards more often. While we do stock a bunch of repellants I have noticed they tend to diminish in effectiveness quite quickly. Odds are we are going to be dealing with ticks and probably their associated diseases more frequently than we do now. No Urgent Care any more for a tick disease so we have to be prepared to deal with it ourselves.
Probably not the best advice for many here, but if you are in a “Ticky” area you might want to stock up on a few treatments.
Additionally a bunch of herbs will repel ticks to a greater or lesser degree. Lavender, peppermint, chrysanthemum, lemon grass, garlic and rosemary are a few. I’m sure there are more. Don’t buy into the idea that you can plant these varieties around your yard and naturally repel ticks. The plants repel ticks like citronella repels mosquitoes. POORLY! The. Oil will work applied to your skin but the scent of the plant loses affectiveness after a few inches or feet at best. Grow these varieties of herbs. Harvest the oil (or crush them on your clothes) . Use the oil to repel ticks.
 
#9 ·
A variety of antibiotics do work to greater or lesser degrees on Lyme disease. The down side if you live in an area with a healthy (or unhealthy) population of ticks is that there are many other tick-borne diseases. Some are no big deal while some can be quite bad for your health.One of the first things the DW and I put together in terms of health care (after the first aid kit and our daily meds) were courses of treatment for the diseases most common in our area that are tick borne (hey what is one more tote full of meds?)
The thought rolling around in my head is that in many likely SHTF situations we will both be out in the gardens and orchards more often. While we do stock a bunch of repellants I have noticed they tend to diminish in effectiveness quite quickly. Odds are we are going to be dealing with ticks and probably their associated diseases more frequently than we do now. No Urgent Care any more for a tick disease so we have to be prepared to deal with it ourselves.
Probably not the best advice for many here, but if you are in a “Ticky” area you might want to stock up on a few treatments.
Additionally a bunch of herbs will repel ticks to a greater or lesser degree. Lavender, peppermint, chrysanthemum, lemon grass, garlic and rosemary are a few. I’m sure there are more. Don’t buy into the idea that you can plant these varieties around your yard and naturally repel ticks. The plants repel ticks like citronella repels mosquitoes. POORLY! The. Oil will work applied to your skin but the scent of the plant loses affectiveness after a few inches or feet at best. Grow these varieties of herbs. Harvest the oil (or crush them on your clothes) . Use the oil to repel ticks.
"...David Cameron Duffy conducted a research project to determine the effectiveness of guineas in reducing tick populations. He concluded that predation by free-ranging guinea fowl does reduce the presence of ticks and other arthropods.

Why is this important? For one thing, according to the Centers for Disease Control and Prevention, ticks can transmit 16 different diseases to humans, including the one currently of greatest concern — Lyme disease..."

 
#13 ·
One nice thing about living in Hell, aka the desert is we don't have ticks. Or fleas, or bed bugs. (Heat treatments kill bed bugs, here you just open your windows in July, problem solved. ;)
 
#15 ·
It is anecdotal. What I've come across is folks doing monthly dosages that seem to wear off at some point before the next one.

What I'm wondering is there a daily dosage that is safe and effective. Is Ivermectin harmless to humans?
 
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#16 ·
It is anecdotal. What I've come across is folks doing monthly dosages that seem to wear off at some point before the next one.

What I'm wondering is there a daily dosage that is safe and effective. Is Ivermectin harmless to humans?
It seems it is safe taken daily, any use other than for parasites is off label. Animal formulations not advised. Prescriptions required, and there are adverse reactions in some people and dosages. Cancer patients who are using it off label work up to relatively high dosages under a doctor's supervision.
 
#17 ·
I don’t know details but I know a person whose wife had Lyme disease. She went through a treatment using bees and getting deliberately stung using a particular process. The process was very detailed and her husband actually attended training for it and became an official bee keeper to supply the bees they needed. Try google, you might be able to locate information on it. Long story short, his wife was cured.
 
#19 ·
Interesting approach. Lots of ticks around here, horses have had issues with anaplasmosis. Son's GSD had had a bad case of Lyme, basically destroyed her joints, most vets (and docs) give a course of Doxy and call it good, if that.

I have some issues with the terminology used in the quoted article, there is a word that totally escapes me right now, that is used by those studying Lyme. I find when talking to docs about things proper terminology helps to be taken more seriously. There is an epidemiologist on Substack who writes often about Lyme, when I remember his name, I will post it.
 
#23 ·
Can't speak to ivermectin/doxy, no experience with that. But some general thoughts on chronic Lyme disease and treatment--

I had a 4 or 5 yr ordeal with Lyme in my late teens/early 20s. Might have picked it up through cracks in my knuckles exposed to blood from butchering deer (I believe they are a host also), as I don't recall a tick bite that I was aware of. But who knows. My hair was a little longer then and maybe I just didn't notice. =)

It is a nasty organism with potentially very serious physical/neurological consequences and not to be taken lightly. It's a very 'stealthy' type of invader and in my understanding it actually burrows in and lives inside the body's cells once it's established, so it's very difficult to impact directly through conventional medical methods (antibiotics etc) and even to test for. Before that stage it lives more openly in the bloodstream so is more easily dealt with. If you have a tick bite with a bull's-eye rash, DO NOT wait around, go see the doctor as that is a key indicator.

Alternative/natural medicine seems to have far, far better success overall, and that is ultimately the path for me that led to figuring out what was going on, and then to an actual cure (symptoms gone for 8 yrs or more at this point, all tests negative). It's still a long process of course (I think it was about a year for me?), but there is hope (also for West Nile virus... different topic tho). There are a few approaches to be taken I believe, depending on the practitioner and their area of training, but overall it seems they focus on bolstering your body's own immune system coupled with something more direct to act against the Lyme itself (in my case, very targeted courses of homeopathics).

Not going to go too deep into a side topic of alternative medicine. That's a whole other bag of worms, and controversial for some, and I understand that. Just know it's out there, it worked for me, and anecdotally it has worked for many, MANY other people with chronic Lyme disease as well. The practitioner I worked with is Dr. Cory Carter of Alt Med Services, in Rapid City SD. His clinic has a website with contact info but idk if we're allowed to post that sort of thing.
 
#28 ·
I've often thought that I have Lyme's.

I don’t know details but I know a person whose wife had Lyme disease. She went through a treatment using bees and getting deliberately stung using a particular process. The process was very detailed and her husband actually attended training for it and became an official bee keeper to supply the bees they needed. Try google, you might be able to locate information on it. Long story short, his wife was cured.
Interesting


My Granny had a baggie that had one of my Granddaddies socks full of sulphur. The would hit our pant legs with it and let us run around in the woods. We never got chiggers or ticks.
I tried that. Nope, not for me.

I attract chiggers and ticks. I get hundreds of bites per year. The 'only' thing that works almost 100% for me is Permethrin, put on almost daily on my jeans, legs and waist, and yet one or a few will still get down into my boots.

,
 
#29 · (Edited)
The name of the German man who studies Spirochete illesses is Geert Vanden Bossche. Some of his writings are quite technical. He has many years of studying them and he had one paper that explicitly talked of how different the Lyme is in the US as oppposed to other countries, lending credence to being engineered. The term for the BACTERIA type is Spirochete, this is the type that causes Lyme and other similar illnesses. Calling it a parasite does not seem quite right.
 
#30 ·
The name of the German man who studies Spirochete illesses is Geert Vanden Bossche. Some of his writings are quite technical. Many years of studying them and he had one paper that explicitly talked of how different the Lyme is in the US as oppposed to other countried, lending credence to being engineered. The term for the BACTERIA type is Spirochete, this is the type that causes Lyme and other similar illnesses. Calling it a parasite does not seem quite right.
Too often the vector of the disease in this case the tick gets used in describing the disease itself. The tick is definitely a parasite while the bacteria it transmits is most definitely not. I’ve even seen mosquito tr@nsmitted malaria described as a parasite. Not really but I guess I c@nt blame journalists these days for their inacccuracies. They are a product of their education. Unfortunately.
 
#31 ·
Well crap, DOC diagnosed me with Lyme today, got me on 3 weeks of doxy, I was pretty sure myself,she said be few days before test conforms but even if test don't confirm she wants me to do the 3 weeks of doxy, I kinda gathered she don't put all her faith in test.
I was shocked I called VA yesterday morning told them I had the bullseye in middle of back, knees are swollen and been hurting way more then normal for couple weeks,and they got me in to see Doc today 😳 I was shocked, usually it's a month or longer to get in to see Doc.
 
#32 ·
Well crap, DOC diagnosed me with Lyme today, got me on 3 weeks of doxy, I was pretty sure myself,she said be few days before test conforms but even if test don't confirm she wants me to do the 3 weeks of doxy, I kinda gathered she don't put all her faith in test.
I was shocked I called VA yesterday morning told them I had the bullseye in middle of back, knees are swollen and been hurting way more then normal for couple weeks,and they got me in to see Doc today 😳 I was shocked, usually it's a month or longer to get in to see Doc.
Well that sucks. Glad they caught it though.
 
#36 ·
I had Lyme a few years ago with the bullseye rash. Got the doxy treatment and it got better. Unfortunately once you have had Lyme it stays in your system even after treatment. It's just not active.

A few months ago I 2 more tick bites, close together. Didn't notice it for several hours as I had been working outside and didn't see the nasty little critters. When I got in and got showered I saw them and carefully removed them. On the inside of my right thigh toward the back. With a day I had a huge back spot where they had been, looked like a bad bruise and was so sensitive I couldn't even wear jeans, had to wear a long skirt. This happened on a Thursday. On Monday I called the doctor's office and was told he was on vacation but I could see one of the P.A.s that was covering for him the next day. Fine.

Get there and when the woman comes in she has absolutely no personality and when I show her the area she says it can't be Lyme because it wasn't the bull's eye rash. I informed it that wasn't always present and that I already had it in my system.

Her comment, oh, well here's 10 days of Doxy and walked out the door. It would be nice to have some P.A.s that actually have some medical knowledge! And guess what? After the doxy treatment I was okay.
 
#37 ·
I think I had Lyme disease when I was a kid, around 1974 or 1975, I mostly remember horrible joint pain and headaches, knees got so bad I could barely walk using broom for crutch, I was in hospital week or two, Dr said something was wrong from doing blood tests but couldn't figure out what, I remember getting crap loads of aspirin since it was helping with swelling and pain a little, I dont remember getting antibiotics but assume I did.
I've had joint issues ever since,
 
#41 ·
Wasn't it ,(discovered) or whatever you want to call it in 1975? I'm in Kansas so long ways from NE where it was first documented/ discovered ?? however I did bunch of online research early 2000's when we got computer, and lot of what I remembered kinda jived with some known symptoms at the time, I also remember around same time frame, I was playing at friends house, we was playing basketball and I was on skins team ( no shirt) and his mother seen weird rash on my back she put something on it and that was pretty much end of that, that was back in the day when every parent would whoop ur hind end if you needed it, or Dr up your boo boo if that's what you needed.