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Well I don't know what I'm talking about. She just got 3 bids on her house with the highest $50k over asking price. She didn't need my advice.
Lol sometimes it happens that way.

Not much going on here. I had some x-rays done today and my fractures are not healing at all. I'm not sure what the next move is gonna be now -- that appointment doesn't happen for a couple more weeks. I'll figure a way around it, I'm sure, just kinda tired of dealing with the whole mess right now.
 

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Lol sometimes it happens that way.

Not much going on here. I had some x-rays done today and my fractures are not healing at all. I'm not sure what the next move is gonna be now -- that appointment doesn't happen for a couple more weeks. I'll figure a way around it, I'm sure, just kinda tired of dealing with the whole mess right now.
Echoing GrayFoal but hopefully it's a dietary issue because it's a lot harder to resolve other possibilities. Sorry you're going through this, it sounds painful.
 

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Oh no! They didn't give you any idea as to why?
Echoing GrayFoal but hopefully it's a dietary issue because it's a lot harder to resolve other possibilities. Sorry you're going through this, it sounds painful.
"Just the way you're built" 😲🙄🤷😂😂😂 You gotta have a sense of humor about these things cuz crying doesn't fix it and I'm an FUGLY cry! 😉 I hate those girls who can cry and look downright HAWT while they are doing it! 🤐🤦

I'm gonna try and force their hand on the PT because weight bearing exercises do help build bone. I'm already on all kinds of supplements (if you haven't read David Sinclair's book Lifespan: Why We Age and Why We Don't Have to you should). There isn't much hope for me 😉 and I realize the knowledge in that book wasn't known back in the 60s and 70s but I wish I'd known this stuff back when I was in my 30s or even my 40s ... Still if I can slow down the degradation of my spine with his knowledge, then it will be good enough.

We all have some burden to bear. It appears mine is gonna be getting even shorter than than I already am! 🤐🤷🙄😂😂😂 Dammit!! But ... I guess I should have known. My grandmother on my dad's side was 4'10" when she passed away. At her tallest she was the same height I was a year ago -- 5'2". I'm 5'1" now. I have always just about half looking said I was gonna look like Ruth Ginsburg when I get old. Apparently the joke is coming to pass. That said, I will fight it with every fiber of my being. I can't imagine my lungs being any more constricted than they are now and I'm not nearly as bent over as she was for a big part of her life.

I have sworn off the tv for until June 1, and am limiting my time on the internet to 30 minutes, twice a day, so you won't see a whole lot of me for the next 6 weeks or so. I have GOT to find a routine that gets me moving a lot more than I am now.

Oh ... And @OneFrugalPrepper apparently I have a "milder version" of AS?? Have you ever heard of such a thing?? I am gonna have to do some research and talk to my neurologist.

One way or another I'll get things as good as they can be for my banged up 63-year-old bones and we will go from there ...

You ladies enjoy your day!! See y'all this evening!
 

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Oh ... And @OneFrugalPrepper apparently I have a "milder version" of AS?? Have you ever heard of such a thing?? I am gonna have to do some research and talk to my neurologist.

One way or another I'll get things as good as they can be for my banged up 63-year-old bones and we will go from there

I would say that there is no milder form, just mildly progressed disease. Mine is hardly progressed because of the way I treated it before I even got the diagnosis.

Focus on inflammation levels and stress levels/management (Ashwaghanda/HTP-5/GABA) for treating it. High dose Vitamin D is important too as are antioxidants (ALA is a good one to start with) and an elimination diet (and make gluten the first thing to go since it feeds inflammation in the entire body.) Work on healing and creating a good gut biome as well. If you've been on Methotrexate, your gut flora is effectively dead at this point. Doing both a probiotic and a prebiotic can help. Magnesium, Turmeric and Tart Cherry can help with inflammation. Make sure your Turmeric has black pepper extract to help with absorption.

If they're not already, request that your C Reactive Protein be tested. This will give you a level of inflammation in your body that is more real time than a SED rate. SED indicates past inflammation. CRP indicates current.

My issue is inflammation. My last CRP read was in January. It was four times the norm even after months on the Methotrexate. That's ultimately why I came off of it. It sucked side effect wise but I would have managed that if the med itself had been working. I go back in next month for a new read. Hoping it will be lower.

I am off all of her meds at this point except for the last few doses of the Prednisone course. I've got my own regiment set back up again and we will see what happens. It's a lot each day but I feel better...at least for the time being. All I am looking to do right now is to throw it back into remission. If i can get it into remission again, I can use the time in between flares to work on keeping it there.
 

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We won the bid on the 200 acres!

I haven't seen issues with bone density in the women in my family. We're mad cows or rather we're prone to Alzheimer's. So I have that to look forward to. It probably depends on the person but my Nan is very happy even though she hasn't got a clue who any of us are. I'm not sure she is aware that her kids are taking turns looking after her. It's like looking after a little kid but she's all smiles and enthusiastic. Physically she's doing great! I'm most impressed with her balance. She started having problems with her memory in her 50's. It's amazing she's still going in her 90's.
 

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This is the 4th night of protests and they keep getting bigger. It's not in my suburb, but it could certainly expand. I'm expecting a lot of people to use the outcome of the Chauvin trial as an excuse to do whatever they want, even if he gets convicted. I have some social things coming up this weekend on Zoom to temporarily distract me, at least. Work is not that busy this week and my coworker who had Covid is back in the office. I am trying not to be too anxious, but it's challenging when things are this close to home and there is a very possible real threat.
 

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Crazy Cat Lady
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I bear a remarkable resemblence to my great grandmother, who was always overweight but in good health right up until she died. It is remarkable I was by myself at an airport and a woman I didn't even know walked up and said "You are __'s daughter" I said yes and she said I came with your grandmother, she said you looked like __ and she was right. Everyone else in my family is skinny (except my half sister).

Mrs. Sardog that is exactly how my husband died. He was getting more confused, how to operate computer, cable remote, etc. he had a VERY basic cell phone. He was having more problems with memory and couldn't remember his pill times even thought they were at 5. Couldn't operate the alarm clock either.

And, pretty much like your friend, I went to run an errand. He called me a few minutes later and we talked for about a minute, he sounded great. I chatted, told him I loved him (my friend confirmed it) and hung up. And when I got home 20 minutes later he was dead. Just like that. Over a month ago and still no cause of death.

I think God knew I was at the end of what I could do and took him. Next step would have been some hellhole Medicaid nursing home. But it didn't happen and I gave him 110% for a very long time. I feel my hands are clean, how it ended.

Now of course it is the job hunting. I don't know if the mortgage insurance will pay; I am hoping, if it doesn't, I can sell the house to my aunt and uncle and then rent it back from them. No one is going to give me a mortgage without a job. But I'm looking!

It can be difficult as I have a minor disability and can't drive (brain damage).

The cats are good though, the rescue squad left Ron in the hall for some hours after declaring him dead. Then they left, the cats came out, saw him, said goodbye (I saw it). Eventually the morgue came and got him.

I am outed as a prepper though that investigator was in my house with a very high end camera for half an hour, wouldn't let me in as she "investigated". Hopefully she saw the water and snacks by his bed, the empty urinals, etc. God knows I had enough bed bath stuff (donated all the towels to the vet).

It is really sad to think all my care for him is at an end. But I am glad he is not suffering. We are both believers so I know he's in heaven.
 

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I bear a remarkable resemblence to my great grandmother, who was always overweight but in good health right up until she died. It is remarkable I was by myself at an airport and a woman I didn't even know walked up and said "You are __'s daughter" I said yes and she said I came with your grandmother, she said you looked like __ and she was right. Everyone else in my family is skinny (except my half sister).

Mrs. Sardog that is exactly how my husband died. He was getting more confused, how to operate computer, cable remote, etc. he had a VERY basic cell phone. He was having more problems with memory and couldn't remember his pill times even thought they were at 5. Couldn't operate the alarm clock either.

And, pretty much like your friend, I went to run an errand. He called me a few minutes later and we talked for about a minute, he sounded great. I chatted, told him I loved him (my friend confirmed it) and hung up. And when I got home 20 minutes later he was dead. Just like that. Over a month ago and still no cause of death.

I think God knew I was at the end of what I could do and took him. Next step would have been some hellhole Medicaid nursing home. But it didn't happen and I gave him 110% for a very long time. I feel my hands are clean, how it ended.

Now of course it is the job hunting. I don't know if the mortgage insurance will pay; I am hoping, if it doesn't, I can sell the house to my aunt and uncle and then rent it back from them. No one is going to give me a mortgage without a job. But I'm looking!

It can be difficult as I have a minor disability and can't drive (brain damage).

The cats are good though, the rescue squad left Ron in the hall for some hours after declaring him dead. Then they left, the cats came out, saw him, said goodbye (I saw it). Eventually the morgue came and got him.

I am outed as a prepper though that investigator was in my house with a very high end camera for half an hour, wouldn't let me in as she "investigated". Hopefully she saw the water and snacks by his bed, the empty urinals, etc. God knows I had enough bed bath stuff (donated all the towels to the vet).

It is really sad to think all my care for him is at an end. But I am glad he is not suffering. We are both believers so I know he's in heaven.
I imagine being investigated feels awful. I'm sorry you had to experience that.

My son died Jan 2nd 2021. We noticed an issue with him not sleeping through the night in Jan 2020. His doctor didn't take him seriously, so we started moving to a different doctor. He started waking up sometimes feeling sick. Sometimes vomiting. We took him to the walk-in clinic. They didn't find anything wrong with him. We took him to the urgent care by our house and they referred him to a pediatrician. We continued going around in a circle with blood tests that came back clear and watching him lose weight. Nothing showed up in scans or blood tests or samples. October 2020 he woke up, threw up green, **** black, peed dark brown and turned yellow. They couldn't find anything in ultrasounds or MRI or CAT scans or the contrast dye he drank. Finally something faint showed up with a contrast IV CAT scan. He had a liver biopsy on his 12th birthday. He had FLHCC and it turned out it's extremely rare and we were told he had 10-12 months to live. A lot of specialists were called in, they were talking with specialists in the UK and the US and he was taking immunotherapy treatments and a lot of other medications. We were told it's an extremely difficult cancer to spot because it hits young people typically 15-25 years old with healthy livers but also because their healthy livers work hard to make up the difference. It doesn't show up in blood tests or other tests. The tumors are typically faint and intersperse through the liver and spread into the body. By the time you spot a solid mass, it's too late. Research into FLHCC only started about 5 years.

I was geared up for a tough year of looking after him. Then December 8th 2020 his contrast CT scan showed his cancer was more aggressive than they thought and estimated he had 2 weeks. He died in 2 months. He was a little tired in the summer but he was okay. Or he said he was okay. The pediatrician declared my son had a mental health issue and there wasn't anything they could do for him in May. We put him in therapy but also went for second opinions and third opinions. His little body did a fantastic job compensating for his liver but hid the underlying problem. I didn't get a chance to do a lot for him, he died so fast. It was over almost as soon as I knew he was definitely sick. We signed the DNR as per his doctor's recommendation because the kid insisted he wanted to die at home. His liver stopped working and we watched him starve to death and become confused and lost. As I watched him one evening, he exhaled but the next breath didn't come. The gut reaction when your baby stops breathing is to save him, help him. But if I got him breathing again, he'd just continue starving. You never imagine you'll watch your kid starve to death.

Since I was pregnant with my first child, I had nightmares of my kids dying. But in my nightmares, they went missing or were killed in an accident. This was worse than my nightmares. My imagination hadn't come up with something as ****ed up as this.

Sorry, to go on about me. Maybe it's unfair to him, but I would have liked more time with him. I know it must have been a lot of work looking after your husband and I appreciate that, I just wanted more time. The last time I took him out of either the house or the hospital, we went to the pet store to get a present for my parents dog for Christmas in late November. Two puppies came running at him and he started crying. The owners thought he was scared of their puppies. But he told me he was crying because he had just realized the puppies were going to live longer than him. I told him we didn't know that. We had to give his treatment a chance to work and if we could shrink the tumor there were other therapies they wanted to try. He didn't argue with me but he was right. I really wish he hadn't been right about that too.
 

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I imagine being investigated feels awful. I'm sorry you had to experience that.

My son died Jan 2nd 2021. We noticed an issue with him not sleeping through the night in Jan 2020. His doctor didn't take him seriously, so we started moving to a different doctor. He started waking up sometimes feeling sick. Sometimes vomiting. We took him to the walk-in clinic. They didn't find anything wrong with him. We took him to the urgent care by our house and they referred him to a pediatrician. We continued going around in a circle with blood tests that came back clear and watching him lose weight. Nothing showed up in scans or blood tests or samples. October 2020 he woke up, threw up green, **** black, peed dark brown and turned yellow. They couldn't find anything in ultrasounds or MRI or CAT scans or the contrast dye he drank. Finally something faint showed up with a contrast IV CAT scan. He had a liver biopsy on his 12th birthday. He had FLHCC and it turned out it's extremely rare and we were told he had 10-12 months to live. A lot of specialists were called in, they were talking with specialists in the UK and the US and he was taking immunotherapy treatments and a lot of other medications. We were told it's an extremely difficult cancer to spot because it hits young people typically 15-25 years old with healthy livers but also because their healthy livers work hard to make up the difference. It doesn't show up in blood tests or other tests. The tumors are typically faint and intersperse through the liver and spread into the body. By the time you spot a solid mass, it's too late. Research into FLHCC only started about 5 years.

I was geared up for a tough year of looking after him. Then December 8th 2020 his contrast CT scan showed his cancer was more aggressive than they thought and estimated he had 2 weeks. He died in 2 months. He was a little tired in the summer but he was okay. Or he said he was okay. The pediatrician declared my son had a mental health issue and there wasn't anything they could do for him in May. We put him in therapy but also went for second opinions and third opinions. His little body did a fantastic job compensating for his liver but hid the underlying problem. I didn't get a chance to do a lot for him, he died so fast. It was over almost as soon as I knew he was definitely sick. We signed the DNR as per his doctor's recommendation because the kid insisted he wanted to die at home. His liver stopped working and we watched him starve to death and become confused and lost. As I watched him one evening, he exhaled but the next breath didn't come. The gut reaction when your baby stops breathing is to save him, help him. But if I got him breathing again, he'd just continue starving. You never imagine you'll watch your kid starve to death.

Since I was pregnant with my first child, I had nightmares of my kids dying. But in my nightmares, they went missing or were killed in an accident. This was worse than my nightmares. My imagination hadn't come up with something as ****ed up as this.

Sorry, to go on about me. Maybe it's unfair to him, but I would have liked more time with him. I know it must have been a lot of work looking after your husband and I appreciate that, I just wanted more time. The last time I took him out of either the house or the hospital, we went to the pet store to get a present for my parents dog for Christmas in late November. Two puppies came running at him and he started crying. The owners thought he was scared of their puppies. But he told me he was crying because he had just realized the puppies were going to live longer than him. I told him we didn't know that. We had to give his treatment a chance to work and if we could shrink the tumor there were other therapies they wanted to try. He didn't argue with me but he was right. I really wish he hadn't been right about that too.
Oh my gosh, I am heartbroken for you and yours. You lived my worst nightmare. I'm sorry for your loss.
 

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I imagine being investigated feels awful. I'm sorry you had to experience that.

My son died Jan 2nd 2021. We noticed an issue with him not sleeping through the night in Jan 2020. His doctor didn't take him seriously, so we started moving to a different doctor. He started waking up sometimes feeling sick. Sometimes vomiting. We took him to the walk-in clinic. They didn't find anything wrong with him. We took him to the urgent care by our house and they referred him to a pediatrician. We continued going around in a circle with blood tests that came back clear and watching him lose weight. Nothing showed up in scans or blood tests or samples. October 2020 he woke up, threw up green, **** black, peed dark brown and turned yellow. They couldn't find anything in ultrasounds or MRI or CAT scans or the contrast dye he drank. Finally something faint showed up with a contrast IV CAT scan. He had a liver biopsy on his 12th birthday. He had FLHCC and it turned out it's extremely rare and we were told he had 10-12 months to live. A lot of specialists were called in, they were talking with specialists in the UK and the US and he was taking immunotherapy treatments and a lot of other medications. We were told it's an extremely difficult cancer to spot because it hits young people typically 15-25 years old with healthy livers but also because their healthy livers work hard to make up the difference. It doesn't show up in blood tests or other tests. The tumors are typically faint and intersperse through the liver and spread into the body. By the time you spot a solid mass, it's too late. Research into FLHCC only started about 5 years.

I was geared up for a tough year of looking after him. Then December 8th 2020 his contrast CT scan showed his cancer was more aggressive than they thought and estimated he had 2 weeks. He died in 2 months. He was a little tired in the summer but he was okay. Or he said he was okay. The pediatrician declared my son had a mental health issue and there wasn't anything they could do for him in May. We put him in therapy but also went for second opinions and third opinions. His little body did a fantastic job compensating for his liver but hid the underlying problem. I didn't get a chance to do a lot for him, he died so fast. It was over almost as soon as I knew he was definitely sick. We signed the DNR as per his doctor's recommendation because the kid insisted he wanted to die at home. His liver stopped working and we watched him starve to death and become confused and lost. As I watched him one evening, he exhaled but the next breath didn't come. The gut reaction when your baby stops breathing is to save him, help him. But if I got him breathing again, he'd just continue starving. You never imagine you'll watch your kid starve to death.

Since I was pregnant with my first child, I had nightmares of my kids dying. But in my nightmares, they went missing or were killed in an accident. This was worse than my nightmares. My imagination hadn't come up with something as ****ed up as this.

Sorry, to go on about me. Maybe it's unfair to him, but I would have liked more time with him. I know it must have been a lot of work looking after your husband and I appreciate that, I just wanted more time. The last time I took him out of either the house or the hospital, we went to the pet store to get a present for my parents dog for Christmas in late November. Two puppies came running at him and he started crying. The owners thought he was scared of their puppies. But he told me he was crying because he had just realized the puppies were going to live longer than him. I told him we didn't know that. We had to give his treatment a chance to work and if we could shrink the tumor there were other therapies they wanted to try. He didn't argue with me but he was right. I really wish he hadn't been right about that too.
I am so sorry to hear of the loss of your son. I lost my oldest son 6 years ago in an apartment fire and know all too well the pain of losing a child. You are in my thoughts and prayers.
 

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We have been running wide open this last couple of weeks trying to get wood cut, dealing with our friends death and having a bake sale today as a benefit for a dear friend at church who has aggressive pancreatic cancer. Several of the ladies at church had baked all kinds of goodies and we had the sale by donation and most people gave $5-20 for a small bag of cookies or 1/2 dozen donuts. One gentleman even gave $50 for 3 or 4 items. Just proves there are still some really good people out there.

This afternoon we just hit a wall and are doing nothing but getting some much needed rest.
 

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Crazy Cat Lady
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I am OK being investigated he was dirty because he wouldn't let me bathe him but his skin was clear and he didn't have any bedsores. He was about 20 pounds overweight so not starved, either. Plenty of bottled water by the bed and the urinals were empty.

Feeling wrung out emotionally today.

I am trying to figure out a schedule for job hunting, home chores, etc. I need to take some time off now and then too but still figuring that out.
 

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This board needs a care button like Facebook has. Like just feels wrong sometimes, but there isn't a great alternative. Maybe an empathize button would be good also.

Got the volunteer promotion I wanted for Toastmasters. Now I just need to hope and pray the entire Twin Cities metro area doesn't go to heck next week. By Twin Cities, I mean Mpls/St. Paul, that is how we locals refer to them. Closing arguments in you know who's trial start Monday. A lot of us are scared there will be violence no matter what the verdict is. Some folks just want an excuse to do bad things.

The fact that TPTB are temporarily stopping in-person school for kids should tell you something. Minneapolis schools end in-person learning before Chauvin verdict | kare11.com

Then we have more protests because of the other you know who. I'm scared the entire metropolis will be literally up in flames. I've woken up in a burning building once in my life due to another's suicide, it was not fun and I don't advise doing it.
 

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This board needs a care button like Facebook has. Like just feels wrong sometimes, but there isn't a great alternative. Maybe an empathize button would be good also.

Got the volunteer promotion I wanted for Toastmasters. Now I just need to hope and pray the entire Twin Cities metro area doesn't go to heck next week. By Twin Cities, I mean Mpls/St. Paul, that is how we locals refer to them. Closing arguments in you know who's trial start Monday. A lot of us are scared there will be violence no matter what the verdict is. Some folks just want an excuse to do bad things. The fact that TPTB are temporarily stopping in-person school for kids should tell you something.

Then we have more protests because of the other you know who. I'm scared the entire metropolis will be literally up in flames. I've woken up in a burning building once in my life due to another's suicide, it was not fun and I don't advise doing it.
I agree about the like button but I think everyone understands ...

And YIKES!! You are right! Waking up to a building on fire does NOT sound like fun -- AT ALL!
 

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Domestic abuse at the claws of Torbie. My upper thigh has a huge scratch, her foot slipped when she was getting up out of my lap and she dug in :oops: Huge bloody scratch now. But no one's going to see my thigh. I hope it doesn't scar!
 

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Praying very hard that I won't wake up to a city in flames sometime soon. We need all the help we can get from Up There. Anyone who wants to add to the prayers, feel free.

I do have a bag packed in case I need to bug out and head up north. I am more prepared for bugging in and staying put, though, thanks to Covid. I could easily last for several weeks without having to see the inside of a grocery store.
 

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Praying very hard that I won't wake up to a city in flames sometime soon. We need all the help we can get from Up There. Anyone who wants to add to the prayers, feel free.

I do have a bag packed in case I need to bug out and head up north. I am more prepared for bugging in and staying put, though, thanks to Covid. I could easily last for several weeks without having to see the inside of a grocery store.
Do what you have to to stay safe! Everyone up that way is in my prayers.
 

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Praying very hard that I won't wake up to a city in flames sometime soon. We need all the help we can get from Up There. Anyone who wants to add to the prayers, feel free.

I do have a bag packed in case I need to bug out and head up north. I am more prepared for bugging in and staying put, though, thanks to Covid. I could easily last for several weeks without having to see the inside of a grocery store.
I hope you're all okay up there.


Realized I forgot to update on the girl child/egg donor situation. Last week she sent her a rather strongly worded message explaining her feelings and wishing her a nice life with the man she chose over her. She wanted to block her immediately but I told her that she at least deserved the chance to reply back. Egg donor read the message immediately but after 48 hours had still not replied. Girl child blocked her and hopefully will be able to move on with her life. She can't talk about it without tearing up but she is a strong girl. She will be okay...eventually.

On the health front, started an adrenal blend and some other supplements around 3 weeks ago in anticipation of the end of the Prednisone course. Was hoping to head off the rise in inflammation again since that is what causes the extreme exhaustion and most of the pain. So far, so good but we will see where I'm at in a couple weeks. It's a literal handful of supplements each day but it's working so far so seems a fair trade to me.

BB, what I'm taking just in case you're curious:

New Chapter Zyflamend (herbal pain blend)
New Chapter Ginger (to protect my heart from super high inflammation)
New Chapter Coenzyme B Complex (Niacin for blood sugar mgmt, B12 to fight the fatigue, etc)
Gaia Herbs Adrenal Health Blend
GABA (sleep)
Valitown Magnesium Complex
High Dose Vitamin D3 (25k a day)
Glucosamine Chrondroitin
BCAA (muscle protein)
ALA (Nerve support and sugar metabolism)
L-Theanine (endocrine function/stress mgmt)
CoQ10
DIM (estrogen metabolism)
Ashwagandha (free radical removal and stress mgmt)
Fish Oil
Melatonin at night

Plus a probiotic, prebiotic, greens powder, a detox powder and a berry powder.

It's a crazy amount daily but it works; at least for now. That's all that really matters to me.
 
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