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Old 10-23-2019, 10:54 PM
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Default Found Out A Few Days Ago Some Disturbing News



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I have always been in pain, some days, worse than others. My mom has told stories that when I was about 4 years old waking up in the middle of the night crying because my back and legs hurt.

Everybody always referred to it as growing pains so never really looked into it until I was about 7. She took me to the dr and come to find out he ran tests and told her and my dad that I had Rheumatoid Arthritis.

I was always told that they didn't find anything wrong other than it might be a little bit of arthritis but that was it.

Here a few days ago I was hurting really bad and wasn't feeling good and my mother started crying and apologizing to me and I told her there wasn't anything to apologize for because she didn't cause it.

Come to find out the Dr did say I tested positive for Rheumatoid Arthritis, which is actually an autoimmune disease if you didn't know that. Come to find out my dad didn't believe the Dr and told my mother never to tell or talk about it and she did exactly that.

She was crying and telling me she wish she had been strong enough to stand up to my dad but she wasn't, that was 1 of just many reasons she tried to commit suicide when I was 8.

I called my Rheumatologist up and explained what I found out and asked her if I had gotten treatment back then would I have gotten all of these other autoimmune diseases I have now and she said more than likely not.

My dad could be an ******* at times, he grew up in hard times and I can see him thinking he did the right thing. Part of me is ticked off at him but some of the things he said to me at times when I was having problems helped me become the person I am today.

So, yea, I am just a bit ticked off at him and I would like to tell him I think he's an ******* for being that way, he died in 2002, but I know deep down he thought he was doing what he thought was right. I guess that was why he was so hard on me growing up but still.

As the old saying goes, no use crying over spilt milk. Just keep going because crying about it dosen't help, just makes things worse at least for me it does. So as usual I just have to bear with it and move on.

I am getting so tired of having to just bear with it though.
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Old 10-23-2019, 11:13 PM
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Isn't that pot oil suppose to help or kratom. Im not a big believer in drug use but for pain help maybe its worth a try.
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Old 10-23-2019, 11:18 PM
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Isn't that pot oil suppose to help or kratom. Im not a big believer in drug use but for pain help maybe its worth a try.
I have my Med MJ card and it does help but I really can't afford it. A months supply costs me 150 bucks a pop. Same with just the CBD oil. I have to have over 2500 mgs of it before it helps any and that costs over 200 bucks a bottle. Kratom dosen't work at all. It just speeds my heart up fast and raises my blood pressure.
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Old 10-23-2019, 11:36 PM
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I have my Med MJ card and it does help but I really can't afford it. A months supply costs me 150 bucks a pop. Same with just the CBD oil. I have to have over 2500 mgs of it before it helps any and that costs over 200 bucks a bottle. Kratom dosen't work at all. It just speeds my heart up fast and raises my blood pressure.
Ive read lots on people that remove sugar and carbs from their diet helps reduce the inflamation.
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Old 10-23-2019, 11:57 PM
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I can sympathize. Some of us have a heavy cross to bear that we didn't take up voluntarily but had thrust upon us. No way to deal with it but keep waking up every day and plodding ahead step by step and day by day, year after year, until our last day.

I'm sorry you have gone thru pain without knowing why. The question 'why' will never be answered for some of us. At least not on this earth.
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Old 10-24-2019, 03:58 AM
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Ive read lots on people that remove sugar and carbs from their diet helps reduce the inflamation.
I'm on a gluten free/whole foods diet, have also cut out as much sugar as I can also. That helps up to a point and but it only goes so far.

Have you ever had the flu? Think of having the flu 24/7. Some days not so bad, some days a whole lot worse to the point it hurts to even roll over in bed. Then have stomach issues on top of that and sometimes it feels like someone is sticking a lighted match into my muscles then have fatigue like you have with the flu but some days have that so bad you have no energy to even take a 5 minute shower.

I wouldn't wish this on my worst enemy. Yes. I am having 1 of those bad nights and i'm damn cranky. This damn weather isn't helping matters either.
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Old 10-24-2019, 04:13 AM
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I can sympathize. Some of us have a heavy cross to bear that we didn't take up voluntarily but had thrust upon us. No way to deal with it but keep waking up every day and plodding ahead step by step and day by day, year after year, until our last day.

I'm sorry you have gone thru pain without knowing why. The question 'why' will never be answered for some of us. At least not on this earth.
Oh, I know why. I have Rheumatoid Arthritis, Systemic Lupus Erythematosus, Connective Tissue Disease, Hashimoto's Thyroiditis, Peripheral Artery Disease Peripheral Neuropathy, Degenerative Disc Disease, Scoliosis, Chrons Disease, IBS with Diarrhea, Chronic Fatigue Syndrome, Fibromyalgia and the list just keeps growing.

I was taught to live with the pain. I didn't start going to drs until 2008. I was then diagnosed with the Fibro and Chronic Fatigue but I still kept working for another few years until 2011 when the Lupus started attacking my kidneys. Then I had to be declared disabled because I could no longer work.

My drs say that because I was taught to ignore the pain my body crashed on me because I kept working until the point my body couldn't take it anymore. My mind was stronger than my body.
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Old 10-24-2019, 05:14 AM
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This is a tough thread. I'm starting to go through the same thing and I also know about hard fathers.

Let's hope you get the help and treatment you need. RA sucks and the pain can be brutal for me so you'll be in my prayers, hoping this is eased for you.
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Old 10-24-2019, 05:41 AM
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I wish there was help I could extend. Autoimmune and pain issues are a "mystery", not an in your face like cancer. It seems to be getting harder to do in depth searches for alternative treatments.

I can send you positive energy and warm thoughts, not that that does a darn thing.
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Old 10-24-2019, 08:33 AM
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Plowgirl, you might want to try something that I'm trying.
Just for a start, look up UC II on Amazon and check out the reviews.
Especially the NOW brand UC II and then the InstaFlex brand. I'm trying out the NOW brand first, since less expensive.
I have degenerative disc, etc. and having tried Glucosamine/Chondroitin, which helped some, trying the UC II as soon as it arrives in the mail. I heard about this from a vet from Thailand.

Also, Boswellia, Hyaluronic Acid, Tumeric and Sam-e may help also. I'll be trying all of these...so will let you know after 7 to 10 days.

The above InstaFlex has small amounts of Hyaluconic and Tumeric, so I bought those extra to get a larger dose.

Might be worth a try, especially if it knocks pain down from a 8-9 to a 2-3. Or you can just wait 10 days for my review of the stuff.
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Old 10-24-2019, 10:00 AM
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People get tired, and there are few things that wear on a person like not getting a break from pain! And, yes, I have found that if I push past the fatigue that it does make the illness worse.

Moringa helps my autoimmune disease: You might try it. If you wish perhaps you could get a plant and grow your own? I bought it in the powdered form, bought empty cold capsules, and make my own. I also found that spices like cumin in the cold capsules helped, but, taking capsules of raw spices did a NUMBER on my digestive tract, and I can no longer use it at all
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Old 10-24-2019, 10:09 AM
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It sucks when a parent disables you. I have lifelong disabilities because my mother drank so much, EVERY DAY, while pregnant. Interestingly most have been more upset at the people who allowed it, vs the woman who did it.

How did it happen? No one wanted to rock the boat and admit my mother would hurt me, even though she had with another child in the past. My Dad and I talked about this recently and I believe him when he said he didn't believe she was drinking "hard" liquor during the pregnancy.

I also read a story of a young woman, she started going blind, about 13 years old. Her parents believed she was "faking' and took her to a shrink who said the same thing. They only took her to an eye specialist when she started falling over things and found out she was 75% blind. Could they have saved her vision if they believed her earlier? Who knows.

I have found blogging immensely helpful with my issues. I didn't monetize my blog, I'm not doing it for that. I just want to share my struggle and I'm doing that. If you enjoy writing you might consider it, it is free (except wear and tear on your hands/typing).

((((Hugs)))) I get it.
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Old 10-24-2019, 01:31 PM
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I'm sorry you have gone thru pain without knowing why. The question 'why' will never be answered for some of us. At least not on this earth.
I didn't mean to snap about I know why earlier this morning. I do know why but it wasn't the answer I meant to give. Check out my post #47 of this thread. I have found the reason why now just doing it is gonna be hard.

https://www.survivalistboards.com/sh...6#post19826376


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I have found blogging immensely helpful with my issues. I didn't monetize my blog, I'm not doing it for that. I just want to share my struggle and I'm doing that. If you enjoy writing you might consider it, it is free (except wear and tear on your hands/typing).

((((Hugs)))) I get it.
Thanks PK, I have a friend who has Fetal Alcohol Syndrome, Bipolar disorder as well as other mental and physical problems because her mother drank while pregnant with her. I have my problems but I feel so bad for her.

As for blogging I am just not into that. I've tried and it just dosen't work for me. I have finally figured out a way, just getting my nerve up to do it is the problem I now have.

Check out this thread and my post at #47 and the answer I got. I have realized why GOD made me this way. I don't like it but it is what it is.

https://www.survivalistboards.com/sh...6#post19826376
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Old 10-24-2019, 01:38 PM
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Originally Posted by albertjohnson View Post
Plowgirl, you might want to try something that I'm trying.
Just for a start, look up UC II on Amazon and check out the reviews.
Especially the NOW brand UC II and then the InstaFlex brand. I'm trying out the NOW brand first, since less expensive.
I have degenerative disc, etc. and having tried Glucosamine/Chondroitin, which helped some, trying the UC II as soon as it arrives in the mail. I heard about this from a vet from Thailand.

Also, Boswellia, Hyaluronic Acid, Tumeric and Sam-e may help also. I'll be trying all of these...so will let you know after 7 to 10 days.

The above InstaFlex has small amounts of Hyaluconic and Tumeric, so I bought those extra to get a larger dose.

Might be worth a try, especially if it knocks pain down from a 8-9 to a 2-3. Or you can just wait 10 days for my review of the stuff.
Thanks Albert, i'll check that out. I've tried just about anything and everything that people have suggested over the years and really havent had much relief. The NOW brand is what I use most on vitamins and minerals because most of their products are made wheat, gluten, soy, milk, egg, shellfish free.
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Old 10-24-2019, 07:25 PM
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Check into the carnivore diet, it helps with the long list of things you posted. It is basically an elimination diet which he a lot of people with immune problems
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Old 10-24-2019, 07:35 PM
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Wow. You guys are all amazing! I have tried to get suggestions of what to try from Dr.'s for years. I am definitely going to try a lot of your suggestions.

I had broken my back years ago and somehow ended up with Fibro, chronic fatigue and of course chronic misc. back issues.

This month I finally weaned myself off all the pharmaceuticals and am trying to eat my way out of pain with the anti inflammatory diet.

Thank you for all the great info.!
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Old 10-24-2019, 09:30 PM
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Hyaluronic Acid. I second that!! Injections have turned my chronic pain knees into distant memories. I eat to get HA in my diet (once a week chicken wings with skin ON) My shoulder with torn rotator cuff is also much better. I also do natural dark cherry juice - the health food store kind with no added sugar. It reduces uric acid level, which can cause gout and arthritis.
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Old 10-25-2019, 01:12 AM
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Check into the carnivore diet, it helps with the long list of things you posted. It is basically an elimination diet which he a lot of people with immune problems
I have done an elimination diet. That's how I finally figured out all of the foods I have had issues with that causes pain, depression, high blood sugar, diarrhea, etc.

So far that is dairy, but I can drink goat's milk, gluten, soy, corn, msg, black pepper, actually all peppers of any kind. Potato, I can have some kind of potato about twice a month but any more than that and it causes muscle pain.

Google nightshades and arthritis.

As for meats, I can eat the 90/10 hamburger but anything lower than that with high fatty foods makes me ill, as does chicken with 15% natural flavors. Manufacturers are allowed to hide wheat, soy and other products in those "Natural Flavors" without having to list them in the ingredients. That's 1 reason I am starting to raise my own chickens.

I can't do pork either that set's my Chrons off, bloating and sick to my stomach.

I have done this several times but some reason or another something happens and I go right back to eating crap. Last time I lasted 4 years and went from 235 to 160. That was before I got sick and diagnosed with all of these autoimmune diseases.
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Old 10-25-2019, 01:19 AM
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Wow. You guys are all amazing! I have tried to get suggestions of what to try from Dr.'s for years. I am definitely going to try a lot of your suggestions.

I had broken my back years ago and somehow ended up with Fibro, chronic fatigue and of course chronic misc. back issues.

This month I finally weaned myself off all the pharmaceuticals and am trying to eat my way out of pain with the anti inflammatory diet.

Thank you for all the great info.!
DR's will not give you suggestions because they don't want you to quit medicating. Their job is to keep you taking medications. They don't want to heal you because if they did they would be out of business.

Google Nightshade vegetables and arthritis, Aspartame poison, gluten sensitivity. You don't have to be diagnosed with Celiac disease to have a gluten sensitivity. It can cause some of the same problems.
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Old 10-25-2019, 07:57 AM
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Quote:
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Quote:
Originally Posted by greif View Post
Check into the carnivore diet, it helps with the long list of things you posted. It is basically an elimination diet which he a lot of people with immune problems
I have done an elimination diet. That's how I finally figured out all of the foods I have had issues with that causes pain, depression, high blood sugar, diarrhea, etc.

So far that is dairy, but I can drink goat's milk, gluten, soy, corn, msg, black pepper, actually all peppers of any kind. Potato, I can have some kind of potato about twice a month but any more than that and it causes muscle pain.

Google nightshades and arthritis.

As for meats, I can eat the 90/10 hamburger but anything lower than that with high fatty foods makes me ill, as does chicken with 15% natural flavors. Manufacturers are allowed to hide wheat, soy and other products in those "Natural Flavors" without having to list them in the ingredients. That's 1 reason I am starting to raise my own chickens.

I can't do pork either that set's my Chrons off, bloating and sick to my stomach.

I have done this several times but some reason or another something happens and I go right back to eating crap. Last time I lasted 4 years and went from 235 to 160. That was before I got sick and diagnosed with all of these autoimmune diseases.

Then maybe try just beef, salt, and water for just one week to see if you notice anything. Have you been tested for food sensitivity when you did elimination in the past?
Good luck
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